Blogs

Stories from those affected by congenital heart defects:

We never thought we would be at three surgeries in three years. We also didn’t know if Duncan would ever graduate out of therapy, but he is! Slowly, he is catching up to his peers and continues to surprise us daily...

The Children’s Heart Foundation and the community it touches are unbelievable. We have met many friends who share similar stories and it’s amazing to feel a sense of belonging. Our goal is to educate people and help raise funds for congenital heart defect research...

Although my board service certainly commits me to the mission of the CHF, I am also committed for another reason very close to my heart -- I myself was one of those children born with a CHD...

The nine days leading up to Josiah’s surgery were terrifying and painful, wondering if and when he would be strong enough for his life-saving surgery...

I'm just an ordinary girl, and if I could find the wherewithal to fight for my son's life alone in a foreign country, where I didn't understand the language– then I want ALL heart warriors to know that they've got what it takes to fight the good fight!

This is not the start I thought we would have had with our first baby. Its been a very crazy start, to say the least, but we are handling it day by day...

Now, 3 weeks after surgery, our baby girl is doing well. The echo showed that the hole is completely closed and we couldn’t be happier that our strong girl is going to be ok...

While Noah’s future is uncertain, we know that 20 to 30 years ago, we wouldn’t have had even this much time with him. Through research funded by organizations like The Children’s Heart Foundation, physicians have made great strides in the treatment and prevention of congenital heart disease...

I became involved with The Children’s Heart Foundation in 2016 after I realized how many children are faced with congenital heart defects and too many outcomes that are not as positive as Olivia’s...

Being that Luna’s condition was so rare, I’m compelled to bring awareness and share her story with the hope that in the future, through research, her diagnosis may have a different outcome. This is why I believe that The Children’s Heart Foundation's dedication to funding research is important and can be life-changing...

In utero, my parents found out that God made me with half a heart. They were given less than 5% that I would make it to full term and less than 2% that I would make it to my first birthday...

My new purpose as his mother is to raise awareness about this very common disease and make sure my boy lives a long and happy life...

The events over the past few years have reiterated a lesson that I thought I had learned long ago; sometimes there are things that you cannot prepare for...

February 10, 2014 is a day that I can never forget. I was 21 weeks along and we went in for a mid-term check-up. Everything had been fine to date, and we had no reason to believe that this appointment would be any different...

It’s been 13 years now since I heard a doctor say, "there’s something wrong with your baby’s heart", but I still remember every single thing and every single feeling from that day...

Adam was born a beautiful, but very sick little boy. He came into the world on Tuesday Jan 12th, 1995 at 11:54 am. Adam was whisked away from us quite quickly after he was not able to breathe. We did not get to hold him...

Our precious daughter Victoria has been my inspiration to help The Children's Heart Foundation fund the most promising research to advance the diagnosis, treatment, and prevention of CHDs...

My name is Izzy. I am 10 years old and I was born with heart defects. I had many surgeries and spent a lot of time in the hospital...

Congenital heart defects (CHD) are the most common birth defect, affecting nearly 40,000 babies each year...